Skip to main content

Why is the new GBS leaflet so Important?

Just before Christmas we received some amazing news from Group B Strep Support.  During September 2017, the Royal College of Obstetricians and Gynaecologists (RCOG) updated their Green-top Guideline in to the Group B Strep infection to advise that, it is now the national recommended practice to provide all pregnant women with information about GBS.  Now after collaboration between RCOG and GBSS, a jointly written leaflet will be provided in the UK to all pregnant women for the first time.

Why is this leaflet so important?

Firstly, the leaflet is endorsed by RCOG who aim to improve the healthcare of women worldwide and publish guidelines to provide high-quality care.  This will bring huge changes in both awareness and ultimately prevention of infections.

A hard-copy of the leaflet will be made available to all pregnant women in the UK (based on 2016 figures, that is around 0.7M per year) and is written in an easy to understand way that includes how to minimise the risk of infection in their baby.  A recent survey highlighted that only 1 third of pregnant women believed they were adequately informed about GBS and that the most likely way of being informed was through conversations with friends or personal experience rather than through discussion with their healthcare professional.  It is also widely believed that a lot of women become aware of GBS through unrelated screening results. 

The leaflet also highlights the more accurate test that is not normally available through the NHS, how the test can be obtained, conducted and the results used by the healthcare professional.

So, in a nutshell, because of the new leaflet every pregnant woman can read about GBS and decide for herself on the action she should take etc.  This must be a huge step forward.

Group B Strep Support

As I’m sure you would agree, taking into account the numbers of pregnancies in the UK each year, the cost of producing the leaflet is not cheap.  I think I am reasonably accurate in stating that it’s around 5 pence per leaflet so the annual cost is approximately £35,000.  This is money that GBSS must raise themselves and need help in doing so. 
That’s why they have set up a JustGiving page – see the link below:

Any help that you can give, large or small would be so gratefully received - even the price of a couple of cups of coffee!  By doing so would help lay the foundations of the UK become more aware of Group B Strep infections, give mothers to-be the necessary information to feel comfortable discussing GBS with their healthcare professional and to give this amazing charity the opportunity to produce and distribute the vital leaflets to all pregnant mothers from 2018 onwards.

I know I would want anyone in my family to receive this leaflet, I am positive you would want that for your family and loved ones too.

Amanda & Jason X


Popular posts from this blog

MP Sharon Hodgson - My stillborn baby did 'not exist'

Last week, in the House of Commons, MP Sharon Hodgson broke down as she revealed her agony of being told her stillborn daughter, Lucy, who was born 20 years ago at 23 weeks + 5 days did not ‘officially exist’.That is because under UK law, parents are not given a birth or death certificate if the child is not born alive before 24 weeks’ gestation.
Although the passing of her daughter was not as far as I’m aware related to a Group B Strep infection, listening to her plea hit home with us and got us thinking about what she is asking for.Her little girls heart had beat through most of her labour and she held her babies motionless body in her arms in hospital.
It surely cannot be questioned that indelible memory is fact that her daughter indeed existed. MP Sharon Hodgson, 02/02/18 Our daughter, Mia was born alive at 25+5 weeks (2 weeks older than Lucy) and lived for 22 minutes, therefore she ticked all the boxes to be classed as having ‘officially existed’ therefore her birth and death would…

4 Years tomorrow….

4 Years tomorrow….

It seems inconceivable that it’s four years tomorrow that Mia was born.It goes without saying that both her mum and I are different people, changed beyond recognition.Sometimes it feels like we are going nowhere, the world is not listening and then out of the blue something happens like a media interview request that happened earlier this week on how things had changed over the 4 years and in light of the new leaflet now being given out to pregnant families detailing the existence and effect of Group B Strep.

Tomorrow will be quiet, just myself, Amanda and Theo – I’m hoping we will see the other children too at some point in the day, because for tomorrow nothing else matters X

Bereavement Leave

Bereavement Leave
A recent social media discussion has got me thinking about the difficulty in returning to work following the loss of your child.For some it be can an unbearable experience that literally pushes many over the edge.I was one of the lucky ones, I for many years have enjoyed an excellent working relationship with both my bosses and my direct reports in the same employment.Bereavement leave, especially time taken for the death of your child is, I guess, not something that enters your mindset through everyday life.That said, it never entered my head that within reason, I would not get given whatever fully-paid time I required to ensure that I was in the best possible place before contemplating returning to work.Some people and way more than I realised until participating in that  recent twitter discussion do not have the luxury of understanding bosses and colleagues that I had when I returned to work 2 and half weeks later following the passing of our daughter.
Of course, ch…